Posted by: urbi December 12, 2004
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My daughter is in ICU. There is an excellent, safe, and caring doctor that has
facilitated establishing a "Care Plan" for my daughter's care. As my daughter's
strongest advocate, and as a very loving and concerned Mom, I observe the
people's work who are caring for my daughter's medical needs to see if it is
done with the best care and to see if it is done properly as far as I can.
I have had battles so to say with nurses who were not gentle and who did not
take care of her needs well. As I have been working on improving my own skills
with advocating for my daughter, I have decided not to allow anyone in the
medical field to "dump" their issues on me either.
When a "Care Plan" is implemented, it is not always followed, depending on the
individual in the medical staff involved. There are even medical professionals
who have "abused" the "Care Plan" thinking it is grounds to remove parental
power (exercising ability to help their child; basic meaning in this context).
Please email me if you have been in a similar situation and you wish to share
tips with me on how best to protect my daughter and my daughter's and my
relationship. My daughter needs my love, touch, and all my care to help her. She
is in such critical condition, that based on how she does could lead to her
getting better, or could lead to a life and death situation (which is where she
is currently tipping toward).
Please help support me. Besides a few very safe caring healthcare professionals,
I don't feel supported as a parent. I feel more of the hospital being against me
than for me to support me in loving and caring for my daughter in this time.
There are helpful, safe people, but I have to be strategic to best advocate for
my daughter.... to advocate for her the BEST care.
There are many things I have done so far to be proactive in documenting, opening
better communications with the primary caregivers including doctors for my
daughter... but sometimes the atmosphere leads me to feel unsafe, unprotected,
unsupported, misunderstood when the safe people are not around.
Mom who is pulling for her precious daughter and pulling for herself.